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  1. K

    CALS Roll call

    Hey fellow CALS. Just wanted to stop in and say hi. My pals had to go to a rehab center for two weeks following an ER visit. She is 'okay', meaning that she is basically following the terms of normal ALS and isn't still in the facility. I can tell that she is deteriorating, because she is...
  2. K

    CALS Roll call

    Haha, I think I understand what you meant... not necessarily 'not clean at all, whatsoever'...
  3. K

    CALS Roll call

    You two are right about not cleaning house for anyone, but I have to do it for my pals. She has just been too weak. I don't have a problem with doing it because I know that it is important. She does have the smooth bore hose connector (I think it is silicone), but she says that putting it back...
  4. K

    CALS Roll call

    Just wanted to say hi. My PALS has to go for an appointment at UCLA next week. She has been refusing to use her bipap (she doesn't want to have to remove parts in the middle of the night to use the rr since it is already so complicated for her to sleep). I'm so worried. I am just reading threads...
  5. K

    CALS Roll call

    Thanks affected. No immediate issues, the forum just prompted me to join because I kept reading posts by other members.
  6. K

    CALS Roll call

    Just joined the forums. My PALS is my grandmother, I am an adult. She is still able to use a walker/stairlift around the home but has issues standing up, dressing, and swallowing at times. I just wanted to say hi to everyone *waves*
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