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  1. S

    I've never been more scared

    Just diagnosed with 95% confidence by a neuromuscular disease specialist with monomelic amyotrophy.
  2. S

    Just diagnosed with monomelic amyotrophy

    Does anyone else on this forum have it? I'd appreciate asking you some questions and what not. For anyone who sees this and doesn't know, it's a "benign" motor neuron disease and/or a spinal cord damage condition and/or an immune response that causes 1-2 years of progressively worsening muscle...
  3. S

    I've never been more scared

    Negative. It's a medical doctor specialty area (like how a neurologist is a specialist). They specialize in physical rehabilitation. That doctor gave the EMG and nerve speed test and found the denervation...
  4. S

    I've never been more scared

    no trouble swallowing no trouble pronouncing words that I can tell. Nobody in my family has ALS or has had similar symptoms/conditions.
  5. S

    I've never been more scared

    I've been dealing with a doctor of physical rehabilitation medicine for neurological pain symptoms up until this point. He recommended I get a neurologist right away and right now I'm just waiting to be seen. He said he would be shocked if it was ALS but based only on my age alone as my...
  6. S

    I've never been more scared

    I have clinical and progressive muscle weakness in my hand. Atrophy in the right arm. Active denervation. Clean MRI. Today I noticed tongue atrophy and facilliation which has sent me over the edge. I'm only 22.
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