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My latest symptom allied to everything else is abdominal pain after eating. Stomach gets bloated and hard ,making sleeping difficult. Since all this started I've had reflux but this is new and pretty painful. I've read that als slows down digestion and can cause this.I'm back to the Neuro in...

Hi. I realise I have posted a lot and asked a lot of questions so apologies. You have been so kind to answer. It is sincerely appreciated and I haven't been back for six months because I wanted to resist bothering you. I am however still in diagnostic limbo after 2 and a half years. I stated...

So today another EMG. Findings essentially the same as six months ago. Low level psw seen in lower limbs. Neurophysiologist said 'still think neuropathy'. I will see head Neuro in a week for another clinical. Going for me is 2 years of symptoms with fasiculations and mild denervation.Mild...

Hi I have been a regular poster on here and am still in limbo after 18 months. Yesterday after seeing my pulmonolgist my fvc was lower than ever 3.9. My sniff test was very good though 138. The sniff relates to the diaphragm so again this has confused everyone. I remember though violent...

Hi and thank you for this forum. In my sheer panic days I was a regular poster ands always treated courteously and kindly -even the tough love I was given was correct and well intentioned.. I am still in limbo land. Diagnosed as we stand by an excellent UK mnd/als centre with bfs and...

Hi I have been a regular poster on here but would like a little more advice and patience please. My last EMG showed denervation in feet and shin but nowhere else. I have had fasis for a year and as we speak I am sitting in a sleepcentre awaiting a study as I hypoventilate at night and have had...

Hi. I have been on here before and have been experiencing symptoms for one year now.24 hour calf fasiculations,and ankle and foot weakness primarily. I went from a BFS diagnosis by the best Uk neurologists to 'sensory-motor-autonomic polyneuropathy'. This was after a recent EMG showing acute...

Hi. Firstly thanks to those who gave advice to me 9 months ago at the start of diagnosis. Igelb, Atsugi and Tillie particularly your compassion and knowledge helped no end. I was initially diagnosed with BFS but after 3 clean Emg's I have had a setback with a fourth. Denevrvation was found in...

Hi.Firstly thank you in advance for your time.I'm aware that people I'm asking advice from are already dealing with this disease which is why I've stayed away from this forum. My story is I presented with widespread calf fasiculations,weight loss,muscle wastage and have now have now had...

Hi.I am at the moment between neuro appointments having had an inconclusive EMG and what turned out after back MRI's to be a wrong diagnosis of radiculopathy.I'm starting the cycle again of clinical exam and EMG. In the meantime my voice has become hoarse,croaky and quieter.I m clearing my...