Thanks for the rational and perceptive response. I am definitely in what they call idiopathic territory.
Everyone knows something neurological is going on but very good and I mean very good people don’t know what.
It’s a trial and tough but I know and I’ve seen that it’s nowhere near as tough...
Oh no you are the last people I would want to upset. I am in diagnostic limbo and I sincerely apologise if I’ve upset anyone.
I have sat in als clinics for 3 years now and I have seen the devastation it causes first hand.
I will of course adhere to your wishes and not post but do please...
Also forgot to add I have had two Emg's that show denervation in the form of psw and fibrillations in lower legs.Does anyone have a view on the abdominal problems please?
My latest symptom allied to everything else is abdominal pain after eating. Stomach gets bloated and hard ,making sleeping difficult. Since all this started I've had reflux but this is new and pretty painful.
I've read that als slows down digestion and can cause this.I'm back to the Neuro in...
Thanks Nikki. Laughed out loud at the Zebras!. I think I’m the middle one. I don’t know exactly what’s going on but I think you ll be ok.Thanks for your time.
Hi Nikki
Kind and as usual entirely sensible feedback.
I know 'feeling ' isn't als but my legs feel weaker and tendons are stretched to breaking.Fasics have been constant.
It also seems to be more prominent on the left side.
The reasons for no als(so far) seem to be mainly clinical and also...
Hi. I realise I have posted a lot and asked a lot of questions so apologies.
You have been so kind to answer. It is sincerely appreciated and I haven't been back for six months because I wanted to resist bothering you.
I am however still in diagnostic limbo after 2 and a half years. I stated...
Thanks for taking the time Al. I am actually on the national health service here where incredibly the very best mnd doctors are free. I really don't question their motives at all.Theyre amazing.
The fact you and others don't see Als is a huge comfort. I promise you I really really am not...