I use NIV, a Nippy 3+ a few hours every day. If someone is nearby I'm fine but when I'm alone I get anxious and panic to the point that I want the mask off but I'm unable to as I can't use my arms.
Has anyone experienced this?
Hi I wondered if anyone has seen this issue with ALS. I am having random uncontrollable ejaculation episodes mostly at night when I am asleep. It would wake me at random times and I don't know why.
I'm a married man with ALS 7 years now. I'd like to know if anyone noticed a point in your journey when your relationship changed from being husband and wife to just patient and carer?