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  • Users: Ginger83
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  1. G

    Durogesic fentanyl patch and Abstral

    Does anyone use or have any experience with either of these meds? I am trying them for shoulder pain but convinced that they are making me worse.
  2. G

    Anxiety and panic attacks while using NIV

    I use NIV, a Nippy 3+ a few hours every day. If someone is nearby I'm fine but when I'm alone I get anxious and panic to the point that I want the mask off but I'm unable to as I can't use my arms. Has anyone experienced this?
  3. G

    Male random uncontrollable ejaculation problem

    Hi I wondered if anyone has seen this issue with ALS. I am having random uncontrollable ejaculation episodes mostly at night when I am asleep. It would wake me at random times and I don't know why.
  4. G

    Did anyone notice a point when their relationship changed?

    I'm a married man with ALS 7 years now. I'd like to know if anyone noticed a point in your journey when your relationship changed from being husband and wife to just patient and carer?
  5. G

    Hi, new member with MND from Ireland

    I'd like to say hi to all and join the team. I'm 32 and was diagnosed with Motor Neurone Disease in Dublin, Ireland on 26/2/15. Andy
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