Thanks KimT. I just do not feel confident wearing the mask using the niv and I panic. Sometimes I am fine for two hours and other times I need it off after two minutes.
Have you ever seen this before?
I use NIV, a Nippy 3+ a few hours every day. If someone is nearby I'm fine but when I'm alone I get anxious and panic to the point that I want the mask off but I'm unable to as I can't use my arms.
Has anyone experienced this?
I received my diagnosis in a motor neurone clinic in Beaumont hospital in Dublin, Ireland back in 2015. I didn't get a second opinion. As the disease progressed it was very definitely motor neurone disease. I don't go to the clinic too often.