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I use both but wouldn't be without my PWC. As Nikki says it is more comfortable and the tilt function provides support you can't get with a manual chair. I do go out (using a van for transport) and that is much easier with a PWC. Ed

I had severe diarrhea with relyvrio so stopped and went back to Tudca which I get on Amazon. Nikki, is there any OTC source for the medical grade you mentioned? Ed

After a long absence I pop up again. Slow progression continues, though I am weaker. Still eating breakast and dinner, speaking slowly, transferring with increasing difficulty. Luckily no falls. Looking forward to both children and families coming for Christmas. Best of he season to all. Ed

I began using a trilogy at night and during naps 7 yrs ago and haven't any decline in lung function (my numbers we were 90-120% until last yr--my 8th since dx when they dropped to the 70's). I don't use the trilogy during the day and am rarely short of breath. So fm my sample of one using a...

Checking in again. Busy raising money for our local ALS walk for ALSA. At OT's recommendation got a toilet lift system (thru VA). Getting used to it--added height above toilet creates challenges for bowel movements, but it does make getting up much easier. As well as sitting down, where...

My wife/caregiver gets a stipend from the VA (around $2000)/mo) and gets free Rx via ChampVA thru mail. Ed

I haven't tried it--speech is not always clear. I'll give it a go. Ed

No side effects with me. Ed

Been AWOL again--still progressing slowly in general but having more trouble with keyboarding,so this will be brief. Getting ready to put our Tucson house on market. Greetings to all.. Ed

I've been AWOL for a couple of months--got out of the long term habit of reading the forum at least several times a week, if not daily. Re: Riluzole, I've been taking it almost since the beginning and it may account in part for my fairly slow progression. We'll be leaving Tucson for the last...