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    off label research findings

    this is promessing ? https://f1000research.com/articles/6-410/v1 off label, viagra is a perfect example https://www.sevbi.org/
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    fysiotherapy YES it helps (in my case)

    I have no arms and legs functonality, but speaking, swallowing and breathing is no problem yet. I was diagnosed with ALS in April 2014. Since then I have FT 2x half an hour in a week. Plus several "hulpmiddelen" ( things, equipment that support and help, (cannot translate)). Now I am using a...
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    on vacation with ALS

    I live in the Netherlands. Many good places for a perfect vacation here. Are there simmilar places in the USA ? example: can a wheelchair accessable room be booked in every hotel ? can a daycare nurse be hired ? Lets start a thread here.
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    what to think about this...

    fyi New therapy halts progression of Lou Gehrig's disease in mice | EurekAlert! Science News
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    When Google fails...

    Hi Everyone, Some of us here are from other places in the world. We don't speak English perfectely and on this Forum abbreviations are used intensively. I know Google is my friend, but it is often ambiguous and sometimes it fails. example: PALS has 7 meanings in wikipedia. I still don't know...
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    hi from the Netherlands

    Hi everyone, My name is Henk Vrielink, I live in Nijmegen in the Netherlands. My first visit to a neurologist was in aug.2010 bút it took until april 2014 to get the diagnose ALS. I have only problems with arms and legs, I use a wheelchair permanentely now. I am 66, married, 3 children and 6...
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