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  1. M

    Still here thanks to RCH4

    It was a pretty easy choice for my wife. She watched her 2 sisters die an awful death and nursed her mother to death. Can't see how their deaths could have been any worse watching their breathing and feeding completely fail but the mind still 100%. We went through every other treatment available...
  2. M

    Still here thanks to RCH4

    What is sad is that we are all in the same boat here, and are arguing about a drug that may be or maybe not the treatment that we are looking for. The suppliers of RCH4 are looking for a sponsor to take through trials (as they don't have the money) and this would then shut down these...
  3. M

    Still here thanks to RCH4

    It's been a while since posting on here. My wife is still doing good with no progress. We went to Sydney for a few days and did a lot of walking and we noticed that her legs have been a little weaker since, but she slowly seems to be getting stronger again. Over using muscles and not eating...
  4. M

    Still here thanks to RCH4

    I find to hard to believe, that when numerous users on here and PLM are reporting similar benefits to my wife's, over a long period of time, that someone suggests that it might be placebo. My wife certainly is not benefiting from Placebo as she has been stable with no progression for about 2.5...
  5. M

    Still here thanks to RCH4

    All, Seems some confusion over the letter. Just want to clear this up. So RCH4 is nothing to do with Edaravone / Radicava at all. RCH4 is a pepetide that works in a completely different way to any other treatments. The letter I posted, was received by an ALS patient, who had heard of RCH4...
  6. M

    Still here thanks to RCH4

    Tessiegirl, at last we agree on one thing at last, and that is Byers is a crook.
  7. M

    Still here thanks to RCH4

    Tessiegirl, Wait up, you have got the message above all wrong. RCH4 is nothing to do with Stephen Byers and ALDworldwide. The letter above is Stephen trying to sell counterfeit RCH4 to patients. This was a letter from Stephen sent. Nothing to do with RC Charity or RCH4.
  8. M

    Still here thanks to RCH4

    No, that is what ALSWorldwide was claiming to try and sell it. RCH4 is definitely not Edaravone
  9. M

    Laurie, How do I send PMs to you?

    Laurie, How do I send PMs to you?
  10. M

    Still here thanks to RCH4

    Also, I did post the ALDWorldwide letter up here and it has disappeared. Guessing that I cannot copy the letter from another forum. Forget as it just appeared. How strange.
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