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  • Users: helkat22
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  1. H

    Trilogy vs. BiPAP

    Yet another update on my mom. She was transferred from the hospital to a skilled nursing facility and the rep came to set her up on the Trilogy. Turns out that because the Trilogy is considered a vent and can assist with breathing, the skilled nursing facility can't use it. So, they're getting...
  2. H

    HELP...BiPAP

    Help. They now have a BiPAP in my mom's room. She's sooo short of breath and coughing non-stop. They wanted to bump her O2 up from 2L to 4L They only put her on it if her O2 sats are low...like she was just at 92% and they don't think she needs it. Is that how they should determine?
  3. H

    Not how things were supposed to go.

    Ugh. So my mom was living independently until 2/10/16. She could still VERY SLOWLY walk with a wheeled walker around her house. Then she got sick...couldn't keep anything down, couldn't really get out of bed. Took her to ER. Admitted with UTI. Developed a junky cough 3-4 days into her stay. Then...
  4. H

    We were gifted a Lift Chair today ❤️

    My mom told me this week that she can't get up from chairs anymore. I was REALLY hoping to avoid any "big" equipment until she moves in with us in about 3 weeks, but the ALS apparently isn't fond of my schedule. Anyway, our local ALSA loan closet has two lift chairs coming in, which we were...
  5. H

    I'd like go get my mom an iPad

    So my mom will be moving in with us. (my wonderful boyfriend and I *just* moved in together 4 months ago). I'd like to get her an iPad because now she'll have access to the Internet, which she's never had before. She's not tech savvy at all, and I don't even know if she'd use it. It won't be for...
  6. H

    Is heartburn a symptom?

    My mom has been having heartburn lately. She said she woke up at 1am crying and couldn't get back to sleep. Does it affect the lower esophageal sphincter or is it unrelated? Thanks, Helga
  7. H

    Transportation (thinking in advance)

    At some point in the near future I believe that my mom won't be able to get in and out of the car (it's a big struggle for her now). She has a car (she's not driving) that we could sell and potentially get a minivan that would accommodate a power chair. Can anyone give any advice on anything...
  8. H

    No mention of MND after EMGs?

    I am grasping at straws hoping that my mom was falsely diagnosed with ALS (though in my gut I know all her symptoms point to it). Do you find it weird that she had one EMG on 4/13/15 and the neurologist (who I didn't care for at all) never indicated anything associated with MND. Then she had a...
  9. H

    My mom was just diagnosed :(

    My 75 year old mom was just diagnosed with ALS on Thursday. Unfortunately it is something I had been strongly suspecting for the last couple months. She was a single mom and I her only child, so this is really tough news. I have a lot of reading to do, but just wanted to say hi. I already...
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