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  1. O

    No more pain

    I just wanted to say that my wife, Phyllis, passed away this morning, 7 months after being diagnosed with ALS. I only learned of it thru a third party at work. I rushed over there but was chased out and not even allowed to see her. Her family is still convinced that I tried to starve her to...
  2. O

    Introducing myself

    Hi Miriam My wife was also diagnosed in Feb. '07. She can't swallow either and has lost a lot of weight. But she also has dementia, which has robbed her of the ability to speak. Her daughter got a temp. guardianship and removed her from our home, saying I wasn't taking good enough care of her...
  3. O

    Im ready to die...

    I know the feeling I pray the same thing for my wife every night. She doesn't need to be put thru any more of this. The dementia has affected her mind so much, she doesn't know what's going on around her. I pray that God will spare her anymore suffering. We've only been married 3 yrs., so like...
  4. O

    Husband with ALS

    Wife with ALS My wife would go to bed at 3 or 4 in the afternoon, but then wouldn't sleep thru the the night. She can't swallow so she drools constantly. She often chokes on her own saliva. Even with all that, I miss her terribly and want her back home.
  5. O

    hello, husband with ALS

    Anger Is there a possibility that her husband also has dementia? my wife has accused me of so many things, cheating, etc., and I know it's not her talking, it's the disease. My wife knows I would never cheat, and yet to be accused of that is hard to take. It's not her fault, and it may not be...
  6. O

    hello, husband with ALS

    Wife with ALS My wife was diagnosed with dementia last Dec. and ALS in Feb. I really doubt she'sll make it thru the year, and every time I see her, for her sake I hope she doesn't. Her daughter got a temp. guardianship and removed her from our home, so I only get to visit her now. She's unhappy...
  7. O

    my husband Shannon died

    Please don't take this wrong I don't know how you'll take this, but you're lucky. I have to fight my wife's daughter in court, unfortunately also named Shannon, for guardianship, so that my wife can die at home where she wants to be. She got a temporary guardianship and removed her from our...
  8. O

    Help

    Don't wait The best advice I could give anyone, especially people who might be newly married later in life as we were, is don't wait to do the legal paperwork. These diseases can strike without warning, and you can never tell who's going to turn on you. My wife and I talked about things like...
  9. O

    Help

    `The very first time I met my wife's daughter, my wife told me not to jump to conclusions. She said most people think she's spoiled and self-centered, but she's really not. I guess a mother's love can be blind, because that was my exact first impression. She's used to having her own way and I...
  10. O

    Help

    My wife can't talk and has a hard time walking. She's refused a feeding tube. She's on oxygen at night. She's still losing weight because she can't swallow. She's down to 80 some lbs. now, from about 150 a year and a half ago. She's now started to fall easily. The dementia is the worst for her...
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