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  • Users: KatBee
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  1. K

    Kat's mom

    Hi friends, I've been MIA for a long time, but my mom was relatively stable. A slow and steady decline, but nothing that limited her abilities much beyond where we were in the fall. But suddenly there were some noticeable changes in the last few weeks, culminating in a huge change today. I...
    • KatBee
    • Thread
    • age bed decline dying eyes home care hope information planning speech treatment wanted
    • Replies: 20
    • Forum: In memory of
  2. K

    Two things: early exit and missing home

    Two major things making life extra hard: 1. My mom never thinks she is going to live past the next two weeks. Months ago she won support from her entire health team for her plan to stop eating and drinking, and was going to in October, but since then has kept moving the date up by slight...
  3. K

    Papaya juice is the best thing

    Hi there, Not sure if you all know about this already, but I wanted to post that PAPAYA JUICE has been our best friend since mom's diagnosis. It was recommended by our ALS Society representative and I don't know how we would have managed without it. When mom gets coughing fits from the phlegm...
  4. K

    ... what helps?

    Hi folks, I've read some of your posts, but this is my first time posting. I'm currently caring for my mom, who has ALS. Feeling a bit lonely and isolated, so I'm reaching out online... About mom: She was diagnosed just over two years ago. She just turned 64 last week. She has limb-onset...
    • KatBee
    • Thread
    • als bed canada caregiver confused dad diagnosed diagnosis early eating electric wheelchair family goodbye health immediately increase life lonely onset speech story swallowing walker wanted wheelchair
    • Replies: 17
    • Forum: Current caregivers
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