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I will be checking in from time to time to see how everyone is doing. Everyone that has and is effected by this disease (PALS and CALS) will be in my thoughts and prayers.

Mike/Nikki Went for follow up (paid out of pocket) as the pain and stress was wearing on me. MRI should some bone spurs, disc causing minor pressure on spinal cord, and a moderate pinched nerve. Assume this can be what is causing my sudden hand weakness? Thanks for listening and advising...

Thanks Nikki. I did have a friend who is a neurologist look at me and he said other than minor clonus everything looked fine. This sudden weakness in hand has me worried again. I will start searching for doctors down here in FL.

Thanks Mike. I did see my GP before moving for new job 2 weeks ago. He said everything looked OK. I asked for him to check me for MND and it was very basic, stand up from floor, push against resistance (no reflex checks) and he said no ALS. This was before my sudden hand weakness and pain in...

Thanks Nikki - I am only 31 with a 9 month old, I am so scared. I am sitting at work crying with my door closed.

Hey Guys, I've been twitching for a while now (4 years or so) had an emg done 4 years ago which was normal. Over the last year I've been cramping real easy - writing, carrying baby, carrying bags etc with no loss of strength. Over the last 2 months I developed a constant focal twitch in my...

Thanks Vince. Appreciate it. The hand issues started in Jan. If there is any weakness it's not really noticiable to me. I do get sore easier but still able to do things I would normally do.

That's correct Nikki and thank you for responding, I appreciate it. Real stressed about having ALS def taking a toll on me and my wife. The left hand issues are scaring me (dexterity and cramping). I forgot to mention I had a neuro exam from a friend who is a nuero at NYU and he said other...

thanks Astugi, going to try and get to a doctor ASAP

Hi Guys, About 3 years ago I developed some left leg cramping along with widespread twitching. I went to GP who referred me to a Neurologist. I had 2 EMG'S done (not neuro muscular specialists) and was diagnosed with BFS. Fast forward to January of this year. I started developing left hand...