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It's hard to believe that my PALS passed more than six months ago. I have been doing ok thanks to friends and family. I miss my husband so much. Sometimes I think I am doing ok, and am able to laugh with friends. Then it hits me. I went this morning to pick up the memory book they created for...

I was dreading Christmas this year as it is my first without my sweet Ralph. I was not sure what I was going to do but my dear cousin talked me into flying to Wisconsin to spend Christmas with them. We had always talked about having Christmas in Wisconsin but it never happened. I so enjoyed...

I ventured out for a long weekend away for the first time in years. I drove up to Sequoia National Park and spent 4 nights. It felt strange to be away, and several times I thought I might be rushing it. I did some hiking through the sequoia groves. Many of the trees had been damaged by fire...

It's been just over one month since I lost my PALS. Thursday I learned that our beloved cat has an aggressive form of cancer. She is only 8 years old and has gone downhill rapidly. My PALS was the one who chose her. I will have to put her to sleep soon. My heart is breaking. V

One week ago I lost my PALS. It's still so hard to believe he is gone. I keep expecting to walk in the bedroom and see him with that little smile despite the bipap mask. I spent the week preparing for the funeral, which is in another week. My family wanted to come and asked for time to get...

My beloved husband passed this morning after battling ALS for 7 years. He approached life with a sense of wonder and was determined to carry on after his diagnosis. He was tolerant and supportive and always ready with a joke even when typing on his eyegaze tablet. He was the definition of a...

It's been six years since my husband was diagnosed with ALS. We are told he is LMN dominant so his progression has been slow. Because he worked with his hands he noticed difficulties right away and was diagnosed very quickly. The first 3 years were not bad and I look at them as a blessing. We...

I took my PALS down in the rain this afternoon to get his first dose of the vaccine. He has become more and more reluctant to go out in the van, especially today when it's cold (for us anyway) and wet. But I told him it was to protect him and feel so much better that he has received his first...

ARRGGHH! My Pals has been suffering with diarrhea for 3 days now. He says he feels fine, but messed the bed Saturday and Sunday mornings, and got me up at 3:45 am this morning. I thought it was the end of it and went for a walk with the caregiver here. Came home to find him back in the...

Friday my PALS received his Talk to Me assistive communication device. After a frustrating attempt yesterday (I couldn't get it set up correctly), I was finally able to get him on the device this morning and he sent his first text message. I think it is going to be difficult for him at first...