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My darling husband, Steve, peacefully passed away on August 26th. He was surrounded by our seven grandchildren, our son and his wife, and myself. It was such a peaceful passing! I cried my eyes out no only because he was gone, but also because he was flying free - no more pain, or air hunger...

My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...

I am so exhausted. We have home health aids taking care of my PALS on weekdays as I still work full time. He has no use of his arms & legs. I get home about 5:15, just in time to help Steve use his urinal. Then I use the lift to get him out of his hospital bed & transfer him to his wheelchair so...

Steve was diagnosed January 2016. I still work fulltime. We have managed to make things work up until now. I would help him dress and eat before I left for work. If I was not going to be able to go home for lunch, I would leave a cut up sandwich & snacks between paper plates with a small...

Steve's OT said we should get him a new cellphone that would work hands free, and that he could wear in a lanyard of sorts around his neck. This would be better for him than a Life Alert, plus he wants to be able to make phone calls. He had an old flip phone and he just couldn't manage it...

We just had our first ALS clinic in Rochester, MN. It went very well, and we came away with more information and resources. Wonderful people there. This morning, my husband was talking with a friend, and he told this friend that he doesn't think the ALS will ever affect his legs. His started...

Hi Everyone- My husband was diagnosed just a few weeks ago, after several months of tests & etc. So, now we're getting the "have you tried this or that" from well meaning friends and family. One that actually piqued our interest, was PK Protocol, which is also used to treat Lyme disease and MS...