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  • Users: Bulldog29
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  1. B

    Need advice-pALS with new baby

    Hi everyone, need some advice/suggestions from the group. A little history, I first noticed symptoms in 2013 and after 3 years of doctors, tests and surgeries I was diagnosed Dec 2017 with UMN predominate ALS. We then found out in February of this year that we were expecting our 3rd child...
  2. B

    Bad news before Christmas

    Well, it looks like I'll be migrating over to the pALS forums. Went for my second EMG earlier this month (first one was in February 2016), Dr Elliott told us that they saw progression to the point of being fairly certain it's not PLS and is ALS. We talked to a social worker at UTSW and the MDA...
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    Any experience with keppra?

    During my visit last week with neuro at UTSW, I told him about my issues with the baclofen. He switched me to a new med called keppra. So far I like it but it makes me super sleepy. Any one have any experience with this one?
  4. B

    Update after UTSW visit

    Haven't been on here in a while (took some advice from some other members and just enjoyed the holidays) but I wanted to give an update on my situation and my original thread is closed now. Anyway, was seen this week by Dr. Elliott (Bill's doctor) at UTSW Neuromuscular dept. He wasn't as ready...
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    New PLS diagnosis and lots of question

    Hi folks, so happy to have found this sight after searching for info about my diagnosis of PLS in July. First off, if this is in the wrong forum please let me know. So, before I ask any questions let me give you all some history. I'm 46, male and in all other aspects very healthy. About 2 1/2...
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