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  1. C

    diagnosed

    Hi to all, after 5 days stay in ALS clinik in Germany, I was finally diagnosed with bulbar onsen ALS with sensory involment... The professor told me that when the people are young there was more evidence of widespread muscle wasting in onset with sensory stuff.... I also have tongue wasting...
    • corwin
    • Thread
    • age als breathing breathing problems bulbar chronic denervation denervation diagnose diagnosed diagnosis foot muscle muscle wasting onset problems professor progression rilutek shoulder slow progression sma swallowing symptoms tongue umn young
    • Replies: 7
    • Forum: Newly diagnosed
  2. C

    update

    Hi, I just want to post. Yesterday I come back after check up with emg specialist. So sumarry: - 2,5 years with symptoms. -Brisk reflex overall -stiffnes in libs( after I take prednisone it`s gone, after stoping the steroids it`s back) -symmetrical muscle atrophy in hads and wrst -summetrical...
    • corwin
    • Thread
    • atrophy back burning decline denervation emg fasciculation fasciculations fingers flexing hope hours improvement ivig mnd muscle muscles night nose pain problem problems professor reflex steroids swallowing symptoms tongue tongue atrophy update wrist wrists
    • Replies: 4
    • Forum: Could this be ALS?
  3. C

    Update

    Hi, quick update... Things are geting worse - I have lost a lot a muscles in hands, neck and tongue. Still shaking on exertion, still very brisk reflex and still clear emg?!?!? Clonus is there even by little movement - almost every movement is with clonus. Tongue is buring ad painfull, on the...
    • corwin
    • Thread
    • als back clear emg? emg emg? muscles reflex shaking symptoms tongue update
    • Replies: 3
    • Forum: Could this be ALS?
  4. C

    Time to say goodbye

    Hi! Some update. Last update 😊 After 5 days in Istanbul hospital under survalience of member of Turkye MND-ALS doctor group( he was 65 years old proffesor who had a lot of Als patients) numerous tests 17 vials of blood, emg done by their best emg specialist, they found .... nothing ABSOLUTELLY...
    • corwin
    • Thread
    • age als atrophy back clean emg emg goodbye health hope mental health mnd muscle muscles shaking support tests tongue update wrong
    • Replies: 1
    • Forum: Could this be ALS?
  5. C

    update and maybe, just maybe misdiagnosed

    Hi, I post my update. Thanks to everybody for the support! As you know I was give a MND diagnosis last month. So I make an apoinment for second opinion in my country. It was yesterday, they make a lot of test, today I received the results. 1. Brisk reflexes - overall, positive bilateral...
    • corwin
    • Thread
    • atrophy clonus denervation diagnosis emg fasciculation fibrillation fingers mnd muscle muscle wasting muscles pain paralyzed questions second opinion shaking support test tests thumb tongue tremor update
    • Replies: 5
    • Forum: Could this be ALS?
  6. C

    progression question

    Hi, I just switch unfortunately the forums from DIHALS to thi one:( Doc`s told me 99 % MND and with hypperfeflexia the chances for something else are pretty slim... So a question I have marked atrophy in my both hands and very very heavy in the tongue, also some in shoulder. What to expect...
  7. C

    Diagnosed yesterday...

    Mod note to future readers: Corwin's diagnosis was reversed and he was told not ALS. Please see his post on 2/16/2017 Yesterday I went to als clinic in Istanbul, Tyrkey and was diagnosed after 5 minutes exam and 2 hours EMG with bulbar Als. Doc thinks atypical because of the sensory symptoms...
    • corwin
    • Thread
    • als atrophy bulbar bulbar als chair clinic diagnosed emg fasciculation hope hours life mnd progression sensory symptoms shortness of breath shoulder slow progression swallowing symptoms test tongue tongue atrophy twitching vision weakness
    • Replies: 13
    • Forum: Newly diagnosed
  8. C

    Progressive symptoms...

    Hi to all. I have some more threads but they are closed. I way saying that i won't write here again but i think it will be ok for another people to find more information. So I have some symptoms for 1 1/2 years.. mainly bulbar. I am 32 years old men in good shape( i was before symptoms) If you...
    • corwin
    • Thread
    • als atrophy breathing bulbar burning choke clean emg clinical cold dirty emg emg eyes flu foot hours information muscle muscles nose saliva shaking speech stupid swallowing sympthoms symptoms tongue tongue atrophy twitches twitching weakness wrong
    • Replies: 21
    • Forum: Could this be ALS?
  9. C

    update 4

    Hi, I continue with updates. Today I visit the MND neuro again . My tongue is totally wreck - 1/2 of it`s size, and burning and tingling all the time. The neuro told me I have deff. tongue lateral atrophy - and the tingling is almost 24/7 there in the lateral line. reflex are live, not brick...
    • corwin
    • Thread
    • atrophy back breathing bulbar bulbar als burning fasciculation ice info mnd muscles problems tongue update
    • Replies: 2
    • Forum: Could this be ALS?
  10. C

    Update 2

    Hi, I don`t know if somebody is reading the posts but this is a forum, so I make my updates. Today another EMG, again clear. Doctor MND ALS specialists told me this time - you have obviously tongue atrophy. My tongue is tingling almost 24/7 and when I stretch it - it quivers for 2-3 seconds...
    • corwin
    • Thread
    • als atrophy back battery bulbar emg flu hope lyme mnd movement problems reading swallowing symptoms test tests tongue tongue atrophy twitching update viruses
    • Replies: 4
    • Forum: Could this be ALS?
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