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My heart goes out to all who are experiencing such challenging times. I wish I had some words of comfort. I am there in spirit with all of you and sending a virtual hug. I haven't posted in quite a while, but have had occasional opportunity to read posts and catch up with everyone. Things...

V, That is good news of slow progression! I know it is difficult for our PALS to wrap their heads around it. Heck, sometimes I still wonder "why?" Of course, there is no answer. Scared, I feel so much for you. You have been through way too many difficult events during the last year!! I'm glad...

Still here as well. Seems like a lot of progression has occurred during the last couple months. Tipping point of the muscles being able to compensate maybe? Chris is losing the use of his "good arm/hand," can barely reach for things. I shower him and help him dress. It is a struggle for him to...

Oh Becky, I DO understand. I try so hard to walk that fine line of being knowledgeable and competent (even when I feel like I'm in over my head) and providing opportunity for my husband to feel valid and important. I love the guy so much, and I know it is difficult for him to watch me doing all...

I mistakenly posted this on the incorrect thread earlier today. Apologies for my goof up. Brain fog. Checking in to say we're still here. I try to keep up with all of the posts. So many amazing CALS and PALS with stories of challenges and loss interspersed with triumph and moments of grace...

Sorry for my previous post. I meant to post on CALS roll call. Der. Sigh.

Checking in to say we're still here. I try to keep up with all of the posts. So many amazing CALS and PALS with stories of challenges and loss interspersed with triumph and moments of grace. My PALS has completely lost the use of his right arm and hand and his left arm and hand are getting...

Hi Paul, you describe it so aptly, the dissonance of mind and heart. Tending to our loved one, being in the moment, yet part of us acknowledging the current and impending loss. I have a profound existential ache that never goes away. I find counseling tremendously helpful but I have a...

My hubby uses model talker. He has done some of the recommended reading out loud but still has much to finish. He uses our walk-in closet as a quiet room. He can still walk, but not far. He has lost the use of his right arm and hand and his right leg/foot and left arm/hand is getting weaker...

Hello to my CALS and PALS family. I can't believe it is June, how did that happen?? I'm getting busier with my PALS as he slowly needs more help over time. He's having difficulty getting up from the couch and chairs so I'm looking for a lift chair for him. He's been using his Tobii, getting...