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  1. E

    "Talking out of his head"

    Question: 6 years in and we might be near the end. O2 levels have fluctuated in the last 2 weeks, but are now in the 90's. Giving Morphine and Ativan every 4 hours. He has started "talking out of his head" - meaning asking about things that aren't real or if I did something. His go to...
  2. E

    Morphine and increased secretions

    Hello all, just wondering if anyone has had increased secretions with using morphine under the tongue? My PALS swears that the secretions are worse once he takes the morphine, but Hospice has advised us to use the morphine whenever he feels that tightening in his chest which is usually a...
  3. E

    Won't go to the Hospital Bed!

    Cals here. Husband dx in 2013. For the last two years, he has lived in a recliner (sleeping there). Of course, goes to the power chair when need be. But, now he has zero neck muscles and needs suctioning several times a day. We have a wonderful hospital bed with all the bells and whistles...
  4. E

    Panic Attacks - Medicine

    Everyone, thanks for the continued sage advice on all topics. Hubby dx in 2013; now wheelchair/recliner bound, trilogy non-stop. Having some what I have deemed to be panic attacks. Comes on if he thinks he's not getting enough air or he gets upset about something. Neuro has prescribed Xanax...
  5. E

    Advice Wanted

    Hello all, I have never posted here, but certainly have used the forums for getting advice for everything! I appreciate everyone here who takes the time to help those with ALS and us CALS. My husband was diagnosed in Nov. 2013. Limb onset at 48 years old. He's done pretty well for someone...
  6. E

    ALS and Diabetes

    Hubby dx 11/2013 - admitted to hospital on Friday with blood sugars of 566 (we knew something was wrong; excessive thirst; frequent urination for last several weeks). Going home on insulin - help! Our diet before was to eat everything and anything. How do we manage to control this and keep...
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