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My dad had a PEG tube and was using glucerna 1.5(8 oz) vanilla flavor. I have 4 cases (120 cans) that I have been trying to donate but no one seems to be able to take it. It's covered by insurance so apparently most people can get it easily. Anyone have any suggestions on where I could donate...

My dad went into caridac arrest at home today. They were able to get his heart beating again but hes in a coma in icu at the moment went without oxygen for 7 mins. Will know more in the morning after scans and such. Just so shocking because it was so sudden. I mean obviously he has als but he...

The ALS Association Amylyx is a combination of sodium phenylbutyrate (PB) and tauroursodeoxycholic acid (TUDCA). I know many, including my dad have been taking TUDCA by itself as as a supplement.

My dad has been having a really hard time with mucus so the clinic got him a cough assist machine. We are having a hard time using it though. What's the best way to get the mucus up? Because we can't ever seem to get it up enough where it goes into his mouth and he can spit it out. We were...

My dad just got his PEG tube yesterday but was wondering about something. We have noticed whenever we go to do a feeding(before we start) that in the tube, between the clamp and where it exits the stomach, there is a little bit of stomach contents that has come out. Is this normal? I just...

So my dad's doctor gave him a prescription for some medication to be taken through a nebulizer. Said maybe it will help with his difficulty sleeping and mucus. I was just wondering which one to buy. They aren't expensive but amazon has quite a few different ones. Any suggestions?

So I'm trying to figure out if my dad needs help with his breathing. He says he has trouble breathing at night intermittently sometimes and same thing during the day but even less often. He has been feeling tired more during the day and sometimes has headaches. The problem is hes in the...

It looks like the phase I/II stem cell studies were very promising. Interested to see where they go from here.

So we met with the ALS clinical trials coordinator at the hospital for special care in CT. They will be enrolling patients in the phase III Tirasemtiv trial and actually will be enrolling the most patients of any sites worldwide. They were also one of the sites for the phase II trial of...

So my dad(newly diagnosed) was prescribed Nuedexta and Riluzole this week. His doctor told him to start one medication at a time. So he is to take Riluzole for two weeks then start Nuedexta. He is about one week into riluzole now...is there any harm is starting nuedexta one week early? He is...