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  1. V

    Extra nutritional supplement

    I'll try to find some other food banks.
  2. V

    Extra nutritional supplement

    Well I talked to our local food bank and they were unable to. The ALS association said they usually take it but currently have a mountain of it.
  3. V

    Extra nutritional supplement

    My dad had a PEG tube and was using glucerna 1.5(8 oz) vanilla flavor. I have 4 cases (120 cans) that I have been trying to donate but no one seems to be able to take it. It's covered by insurance so apparently most people can get it easily. Anyone have any suggestions on where I could donate...
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    Vikman's dad

    Re: Dad in coma Thank you everyone for the prayers and hugs, it's been a difficult last week or so. His funeral was this Tuesday, I miss him so much everyday but we are taking it day by day trying to be strong. He was struggling a lot these last few months, so tired all the time, so in one...
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    Vikman's dad

    Re: Dad in coma Thank you everyone for the positive vibes, yes it took us completely by surprise. Unfortunately we have beem told he is brain dead and we will pull him from the ventilator tomorrow once more family arrive.
  6. V

    Vikman's dad

    My dad went into caridac arrest at home today. They were able to get his heart beating again but hes in a coma in icu at the moment went without oxygen for 7 mins. Will know more in the morning after scans and such. Just so shocking because it was so sudden. I mean obviously he has als but he...
  7. V

    Phase II Amylyx Trial at MGH

    The ALS Association Amylyx is a combination of sodium phenylbutyrate (PB) and tauroursodeoxycholic acid (TUDCA). I know many, including my dad have been taking TUDCA by itself as as a supplement.
  8. V

    Cough assist help

    Thanks for the advice, will try it out!
  9. V

    Cough assist help

    Ours is at 35 for both as well which is the medium setting. It has one more lower and higher preset, haven't tried the higher one. Will try the pineapple juice, I was reading elsewhere on here that papaya juice may help too?
  10. V

    Cough assist help

    Please move to the correct forums if this is the wrong one :)
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