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  • Users: Sjm16
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  1. S

    Please help with finger curling

    Thank you, each one. I appreciate your input and will check out each. "Taking a knife to a gunfight"..... Yeah, I can relate ....perfect analogy for so much with ALS... Susan
  2. S

    Please help with finger curling

    Just a question- diagnosed Aug 26/15 ALS Bulbar inset. BiPAP, speech almost gone, just had 11 days ago the peg tube but complications from what normally is a simple procedure set me back a ways, weakening In upper body and some respiratory problems of course. My left hand has been weaker and one...
  3. S

    Alternative Methods

    Good idea, too.
  4. S

    Alternative Methods

    Thank you, Tillie !
  5. S

    Alternative Methods

    Just thought this might be the best section to ask a simple question that any of you on this site might know easily: What would be some healthy protein drinks ( tasty) low in sugar. I want to add Vitamin e's and a few other vitamins I find difficult to swallow sometimes. Can Coconut Oil be...
  6. S

    My Terms

    Hello Time, Just sending my regards to you and best thoughts. I appreciate your candour and honesty. I was given the diagnosis on Aug. 25th, so still very new sitting, sleeping, waking and walking with this Bulbar Onset. Although I have worked in the mental health field, social, community and...
  7. S

    newly diagnosed

    Thank you, Nikki and thank you, Tillie. Had some very rough days . Saw tmr Neurologist yesterday and will soon be getting some needed or helpful resources from the ALS Clinic here, and just had enough encouragement somehow and faith to get me through . I appreciate your time and suggestions...
  8. S

    newly diagnosed

    Thank you and hope you are doing as OK as possible.
  9. S

    newly diagnosed

    I am doing terribly from my own estimation. After Aug 25th, there was some serenity or something that seem to carry me through the initial hit of finally, the diagnosis. There feels like a terrible battle going on and despite this last week in particular, and just hopelessness, lack of...
  10. S

    newly diagnosed

    Thank you each for your responses and openness. I will take every point into consideration. It was very helpful and helped to " normalize " some of this into a new normal. The last few days, just at the 3 week Mark have been suddenly more daunting, sad, angry but hopeful. Very emotional to...
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