I thought I would post this here in hopes of helping others who have either been told they possibly have als or those who believe they do.
I was told I had possible als due to four abnormal emg and clinical exams, however there were always some symptoms that did not add up and I have very...
It seems that this roller coaster is finally coming to its last stop, 21 months from the beginning of emg/ncs and referral upon referral we find ourselves in limbo but with the advice of those on this forum with a competent Dr.
When I read through posts I see a very common theme the g is very...
Since I first posted on this site I have had so much helpful and useful information. I thank all of the moderators for all of your patience understanding blunt but true words and suggestions.
My last postings were about my frustration with the care I was receiving. I asked the very questions...
All of you are very smart and I am not sure how I should approach my neuromuscular doctor. We are very disappointed in the clinic we are using. The first major problem happened in November after a clinic visit in October there was talk of a muscle biopsy the nurse called me and asked me to come...
als
back
baclofen
biopsy
breathing
clinic
confusing
cure
diagnosis
emg
eye
information
mnd
mri
muscle
muscle biopsy
muscle wasting
physical therapy
pls
problem
sad
speech
swallowing
test
tests
therapy
treatment
I have not experienced pain up until the last 3 months or so, my neck and shoulders have been really bothering me so the Dr ordered an MRI of my c spine and lower lumbar basically the results show mild degenerative changes and facet joints arthropathy lordosis mild signal loss and tarliv cysts...
We recently had a our first visit with my care team, and it really helped us. It is so nice to have a plan and a place to ask real questions and get real answers. I think it has restored ourbhope strength and courage after a long and stressful 3.5 years. My attitude has completely changed.
I...
It is time for me to move from do I have als/mnd to another forum however I do not have a specific diagnosis as of yet, to explain which I am confident most or all of you will understand my 4 emg's and clinical exam cannot be denied.
I went in November 18 th for a fourth emg it is always an...
First I appreciate your message to newcomers there sure is alot of misleading information on the net. Second I'm not really asking if I have ALS, as I have been told 3 times I do and now find myself at one of the leading ALS centers in the south, I have had 3 emgs first neuro said it was...
ability
als
autoimmune
back
family
fear
hope
information
lift
nurses
paralyzed
problems
respiratory
respiratory failure
shower
steroids
stroke
support
swallowing
testing
tests
treatment
urgent
wheelchair
work
young