Search results for query: *

  • Users: AnnMarie
  • Content: Threads
  • Order by date
  1. A

    Reflux

    Hi. What is anyone taking for reflux via tube feeding? Have been on Prilosec powder for suspension, but now with Medicare prescription plan it costs a fortune. Looking for other alternatives. Any suggestions? Thanks
  2. A

    Just a bad day......

    Normally, I go with the flow but just had enough today. So a little pity party this am.Losing ground each week and now a frozen shoulder. So painful. So had a good cry. My poor husband all he could do was hold me and said let it out. It's out of my system now, so onward.
  3. A

    Mic key

    This week I had my Cook pigtail g-tube swapped out for a Mic Key button. It's been 3 days and I'm definitely liking this one better. (Had the Cook for a year). My abdomen is getting some much needed relief from tape irritation and I have not made any messes such as leaking, or disconnections...
  4. A

    Traveling with Trilogy

    All, Have a question about flying with my trilogy. This is new territory for me and looking for guidelines and/or advice on getting this on the plane. I don't believe I will need it on the plane- I currently use it only at night(S/T BiPap mode) Here is what I have done so far: 1. Obtaining...
  5. A

    A PEG Experience

    Thought I would share a recent event with my PEG. I had it placed 6 months ago. Received all the information of what to do if something happened. Thinking of course, that won't happen to me. Guess you know where I am heading now with this. My husband and I were you on a 7 day cruise and the...
  6. A

    New to the Club

    Good Evening All, I have been lurking on the forums for a few months now and thought Iwould introduce myself as one of the newer members. I was diagnosed at Mass General ALS clinic on June 3 2015 with PBP. My symptoms started in early Nov 2014 with slurring. For the next 7 months I had blood...
Back
Top