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  • Users: Osiyo
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  1. O

    Unapproved ALS Drug

    OK we're using a Dr. Bedlack. as a what? I am using this RCH4 also and have been for 3 weeks now. I have had no side effects during the first "side effect test" phase. I have increased the dosage as requested by my supplier and am into the end of week 3 which includes 3 injections of 0.5ml or 5...
  2. O

    Unapproved ALS Drug

    Greetings to all interested, I have found 2 others here in this forum not including myself and we have Mich5 that are taking this RCH4 Peptide, 2 of us are newbies on this odyssey of emotions, fears and most of all hope. The darkness of this tunnel we call ALS is not nice and very frightening...
  3. O

    Unapproved ALS Drug

    Greetings Mich5, I have been for the last 3 months in contact with this mysterious RCH4 Peptide organization. I have traced their IP Address to England, they are in jolly ole England, or at least a portion of them are? OK I have received 2 amples that is a 3 month supply? Next, I took my...
  4. O

    Unapproved ALS Drug

    the new drug is called RCH4 Peptide, I have signed a consent form, and filled an evaluation of sickness they have contacted my neurologist, I sent them my diagnose. and checked out the link they sent me in documentation; Main The sponsors of this web site are a voluntary group of retired...
  5. O

    Weird feeling when I swallow?

    Greetings Carol Sue, I have ALS and was diagnosed in July 2015. I have Fasciculations or Muscle Twitching in my entire body, even in my tongue, and then come the muscle cramps all over my body, some nasty but most just a nuisance more than anything, my grandchildren think I'm playing monster...
  6. O

    Weird feeling when I swallow?

    CarolSue, B blessed first off. I have the same problem, my problem is a muscle spasm of the closing valve. the Valve that closes the air passage when you swallow and opens when you breathe. I have an almost non noticeable spasm were my Value opens and closes involuntary once or even twice as I...
  7. O

    Silent warrior

    Yes it hits the truth right between the eyes, I can only exist working with this ALS in Combat modus, one moment at a time living by the moment. In combat here are so many things, details that can mean death on the spot if not observed and worked around. I was 16 months in the NAM as a member...
  8. O

    Pride goeth before a fall. A cautionary tale.

    @♥ GregK, outstanding narration, just grabs you, slaps you and opens your eyes and ears, clears the mind so that one can understand what one just read. Bravo, Been There Done That, Sau Sponte Semper FI Ooohra, I know them all was also over there in the Nam, proud as can be, was with the MAC V...
  9. O

    Time to say THANK YOU!

    @Ells, It's just plain humbling, this type of thing brings tears to ones eyes. Where is the tissue? I'm new here too but only 8 months into this journey. It's nice to know there are survivors of more than 2 to 5 years, that's the average survival time is it not? I am US Native American of the...
  10. O

    Question about MicKey/PEG tube

    @Nikki J @Ells, Super, cornered the rascal and got it so to say. Ok, I will have it done at the earliest possible date, and I will start out with the MicKey button. I fear nothing except the unknown. Be blessed as you're answers are precise and that is what I was looking for.
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