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my PALS is still working but lost the ability to talk before almost everything else. He is currently using a kindle, phone, and PC with apps to comunicate but needs one with more volume to be heard more clearly at work. Has anyone found a device that you find has more volume capability than...

We won't be having the PEG discussions until after the next round of appointments....next with speech therapy and nutritionist, then back to the neuro and on to the gastro. He will have the PEG placed when it is time but is having less problems as we've figured out how to prepare food and have...

Nope...it's happening all by itself but the doctors aren't unhappy with it yet....he's down to 270 and they are talking about a feeding tube soon. Will know more after the next "breathalyzer" the 15th. He's still eating well and with the alka seltzer having much less problem with it.

I did take everything I read with a "grain of salt" so to speak....but since none of it seems to be costly or radical...and basically healthy for just about anyone, I figure it can't hurt and at least it gives me something to do. I didn't believe that it would be a cure but figured an...

My partner, the love of my life, was just diagnosed with Bulbar onset ALS. His speech is almost gone and swallowing and mucus are a big problem. We are trying to find answers, muddling thru as best we can but so much of what I'm seeing here is for the problems of muscle weakenss and paralasys...

On another thread there is much talk about taking alka seltzer twice a day for control of drooling and excess saliva. We are starting it tonite

My partner has just been diagnosed wwith bulbar onset AlS. Speech & swallowing were 1st. Symptoms. I found a book called Conquering lou Gehrigs DSEASE...An ALS diet. It is comprehensive but not outrageous or difficult to find what we need. We are just at the beginning& have no idea if it will...