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  • Users: Sam63
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  1. S

    Riluzole

    Is anyone still taking Riluzole/Rilutek? Pros/cons, anything will help. I'm considering stopping it.
  2. S

    Drs. Appt

    Good morning all, I go for my first Drs. appt. since diagnosis. Keep your fingers crossed that nothing but my speech has changed in 3 months. A good friend of mine used to say " I'm as nervous as a opossum eating briars through a picket fence" that pretty much sums it up! Hope everyone has a...
  3. S

    Scared

    Morning all, I'm scared and don't know what to do you think. The past couple of days my neck has been sore I attribute it to looking down at computer and straining muscles but it's still sore. Is this a normal progression or am I working myself up for nothing. I also woke up at 3am this morning...
  4. S

    Add me too

    Hi my name is Sandy, I was diagnosed in June with ALS bulbar onset. I'm trying hard to sort through all the info and find something that will truly slow this disease down. There is so much info and I'm not sure what's legit and what's not. Mine started Nov. last year I noticed that...
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