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I'm still here :)

Welcome Susan, but sorry it had to be like this. I was diagnosed in June 2015 with bulbar onset I know exactly where you're coming from. You will find lots of helpful and knowledgeable people here!

I have read some of the side effects that people are having and saying its damaging their liver, just really scared me. It only cost me $20 and I've had no real side effects from it. I have to take it with some food and by the end of the work day I'm exhausted. I seem to be tolerating it well...

Is anyone still taking Riluzole/Rilutek? Pros/cons, anything will help. I'm considering stopping it.

Good afternoon all. Just quick update, Drs appt went well no real changes since last appt, except speech. Boy is that a load off my mind. Don't know why I get so worked up knowing that no matter what the outcome it really can't be changed. For now I'm good to go for another 3 months! Yay 😊...

Good morning all, I go for my first Drs. appt. since diagnosis. Keep your fingers crossed that nothing but my speech has changed in 3 months. A good friend of mine used to say " I'm as nervous as a opossum eating briars through a picket fence" that pretty much sums it up! Hope everyone has a...

Welcome. You are among friends:)

Wow.. That looks awesome

Thank you all for your input. Makes me feel better to know I'm not totally alone in what I'm experiencing and feeling. I will certainly try the suggestions you have given me, anything beats the panic that I woke up with this morning. This is all very new and the least little thing freaks me out...

Morning all, I'm scared and don't know what to do you think. The past couple of days my neck has been sore I attribute it to looking down at computer and straining muscles but it's still sore. Is this a normal progression or am I working myself up for nothing. I also woke up at 3am this morning...