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  • Users: Rae
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  1. R

    Thank you

    I wanted to thank everyone for their condolences and words of support and encouragement during this most difficult time for me. Marv has been gone over a week and it still doesn't seem possible! You are all wonderful people and are so helpful! Marv's funeral was attended by over 450 people and...
    • Rae
    • Thread
    • als cure family helpful love support wanted
    • Replies: 4
    • Forum: Current caregivers
  2. R

    I've lost him

    Hi Everyone, This is so difficult for me to write, but I wanted to let you all know that my husband Marv passed away this weekend on Sat. the 18th. He had been getting weaker everyday and last Thursday he started running a fever. I gave him meds. for fever plus antibiotics, but he just got...
    • Rae
    • Thread
    • advice back breathing kids love meds night pressure reading running shower sleep vent wanted work
    • Replies: 12
    • Forum: Current caregivers
  3. R

    Question

    Hi Everyone, Does anyone need any Rilutek? I have two unopened bottles of 60/ea. and one bottle with 29 pills left. My husband's Doctor has taken him off it after taking it for a year and a half. I would be glad to mail it to anyone who could use it. Just send me your address! Rae in NJ :)
  4. R

    Rae in N.J.

    Hi Everyone, I am new to this- but as my husband's sole caregiver, I have been reading your posts and have found valuable suggestions and help. My husband, Marv, was diagnosed in Sept. of 2005. He started with slurred speech, then difficulty in swallowing and eventually had to have a peg...
    • Rae
    • Thread
    • als botox caregiver chair diagnosed hospice life muscle neck pain pain peg power power chair problem reading saliva slurred speech sole caregiver speech support swallowing tongue work
    • Replies: 10
    • Forum: Current caregivers
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