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    Wrongly diagnosed

    Here goes about a year ago was giving als diagnosed by northwestern hospital in Chicago by neurologist department not much progression ran a few more test spinal bulged atrophy aka Kennedy disease not much better just curious they made it seem like no big deal have anyone ever heard of this...
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    Sorry Greg didn't know I had to hold a special title to give information just sense it seems...

    Sorry Greg didn't know I had to hold a special title to give information just sense it seems like everyone progresses differently but now I see it a pick and choose forum I always figured the more information the better
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    One additional question.

    Anxiety and stress is making your twitching worse at least that what happens for me
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    Here goes

    An official diagnosis came 2 Monday ago I guess my story begins in October 2012 when I woke up with body wide twitching and a burning sensation threw out my body I was sick with flu like symptoms right before that like everyone else went to doctor google so scared myself with als months went...
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    Testing on Monday

    Bulbar als is the official diagnosis sorry took so long to get back dealing with a lot of anger issues
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    Husband concerend about wife

    These symptoms are identical to what I went through in January 2012 I don't know if the got better as I still get all these feelings but still found nothing a bunch of blood test clean emg I still talk and walk still can work doesn't know if it helps like you I thought ALS I wish I never read...
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    Testing on Monday

    Yes the neurological specialist said no the original nuero I saw said she thought so do sent me to see a special ist at northwestern and that was because of bodywide fascilations and something she said about my reflexes
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    Testing on Monday

    Sorry I did back in 2012 the said benign the reason I going Monday is I raspy voice for a month no improvement so my doctor set up this appointment because he finds nothing wrong in my thoart he believes neurological
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    Testing on Monday

    No that is why I am going
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    Testing on Monday

    Curious in what to expect as far as test go seeing a neurological specialist at northwestern hospital
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