Search results for query: *

  1. scaredwifetx

    New Year and those in my thoughts.

    Wow...its been so long since I have logged in here. Doesnt mean you all arent in my thoughts. It's been 15 months since Steve gained his wings. I must say the first 12 months were full of waves and at times so hard. On his Wing Anniversary I promised him to make changes and to choose happy. At...
  2. scaredwifetx

    Steve's flying free

    I have shared so much here over the years that I feel that this part of journey should be shared here before anyone or anywhere else. I hope that this helps a CAL somewhere. Steve was very anxious last night and today about the mask coming off and his breathing. He was fighting the meds meant...
  3. scaredwifetx

    Steve's battle will be ending the next few days

    Hi Everyone, I know its been awhile since I have posted. I just felt that today was right. The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever...
  4. scaredwifetx

    PALS and sticky hands

    For the past few weeks Steve has been having a issue that is not only driving him nuts, its also now driving us nuts. He is constantly wanted his hands and fingers washed. He says his hands and fingers are sticky. He doesn't eat normal food and only drinks shakes. He doesn't have much use of...
  5. scaredwifetx

    Finding piece on my back porch.

    Mike and I having been working for two weeks to create a place where we can both go to feel some peace, beauty and fresh air. I can't tell you what a gift this is for me. We sat tonight, admired the beauty, life, wonderful sounds and smells. We also have a pair of Cardinals nesting near the...
  6. scaredwifetx

    hospice- have a few questions

    Steve had clinic on Friday and the doc recommended/convinced, Steve and myself that bringing in hospice now, is a good idea. Of course, she was very careful to explain... that it was a good way to get extra care and support. She also helped him to understand that there are still no clear cut...
  7. scaredwifetx

    questions on progression and trilogy settings

    Hello, I am actually posting questions that Steve is directing me to ask. He is concerned because no one has medically (other than Laurie's help} told him what settings he should have on the Trilogy and if these settings need to change as his breathing capacity is changing. He is now using the...
  8. scaredwifetx

    Does the fear ever stop???

    I have been catching up on posts tonight. I am now sitting here in tears and have to write my own post. I wanted Christmas to go by and just get over. I rung in the New Year with my best friend and was so heartbroken when the clock struck midnight. My imagination/fears are haunting my every...
  9. scaredwifetx

    Falling and pride

    Over the past week, Steve has had four falls. He did not tell me about the 1st two. I found out two days later. He didn't want Mike to tell me as he knew I would get upset. This morning, after I left for work he fell two more times. He and his brother were supposed to go to a study...
  10. scaredwifetx

    feeding tube issue- Thank you Rose

    I feel the need to shout a great big " thank you Rose". This morning Steve woke to find blood around his stoma. He admitted to me that he has had issues with blood and yellow stuff around it. I was very uneasy, as I also found a bunch of scrapes and cuts on him. He has had a couple of falls...
Back
Top