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Yesterday I called the ALS foundation main number. I just received a wonderful call from someone to help. She's connecting me with the ALS chapter (NOT clinic) in Sacramento for help. She gave me some great ideas and said every day new technology is developed to help ALS patient enjoy life...

Hi my parents have liked both doctors including dr joyce but the rest of the clinic is terrible. They won't return calls etc etc I just got off the phone from the ALS foundation back east. She is calling the ALS chapter in Sacrmento for help. I am just disappointed that the ALS clinic hasn't...

thanks, yes we are in Auburn and feel very much alone. Unfortunately my mom can no longer use hands, fingers etc. She is days away from not being able to use the tv remote. She wears the bypap 24/7 now. Who is the new doctor? I have a call into a generic ALS number for help since we are not...

Hi, my mom has had ALS for a year now. She can no longer use her hands and her legs are days away from being unable to stand even to get up off the chair. Unfortunately not getting much help here in CA from the ALS clinic so feel all alone trying to help her. Need any ideas on things ALS...