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  • Users: KateO
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  1. K

    speech generating device

    This topic is so timely for me! Thanks! I was told by ALS Clinic last January to start recording my voice. I live in Montana - my speech therapist didn't know how to do it and said she'd research it. So..over two months later and I haven't even started. I am feeling very frustrated and started...
  2. K

    Power scooters

    I just got a loaner scooter myself. If you have weak hands I would NOT advise you to use a scooter. It definitely requires both arm and hand strength to drive the thing. I am looking at the scooter as a short-term tool. I am in process of getting a power wheelchair as well. We're going on...
  3. K

    Adaptive Technology for work

    I work out of my own and am trying to figure out what types of adaptive technology I will need in order to continue working as long as possible. This is list I came up with so far: all new office furniture to make it easier to work while expending least amount of energy (eg: lower file cabinets...
  4. K

    Just Need to "Talk"

    I too have noticed my dreams becoming more vivid. The way I interpret this for myself is that since I can no longer experience many aspects of life in the way I used to I am turning to my sub-conscious to experience those things. Couple examples: I was very physical before ALS. We live on edge...
  5. K

    I have been diagnosed with ALS

    Shatzie - I too am sorry for your diagnosis. I was diagnosed in September - yet, I knew in my gut it was ALS since last May. I have a 12-year old daughter and 14-year old son. My advice to you is: do what feels right for you when talking with your children. Do NOT listen to others trying to...
  6. K

    shopping for a bidet

    Thanks Al. Just to let you know, I tried the "search" both before I posted and then again for a second time just now. First, I typed in "bidet" - nothing came up. Next, I typed in "toto" - again, nothing came up. Is there some secret trick to using the search button?! If so, can you share with...
  7. K

    shopping for a bidet

    I am shopping for a bidet. I know I want the warm water, air dry functions. Since this is an expensive purchase I want to buy the best I can. I'd appreciate hearing your experiences - and recommendations. Thanks!
  8. K

    Women only - menstrual cycle question

    We just ordered a bidet. I am really looking forward to it. I talked with a woman whose father died of ALS. She told me that was his most FAVORITE piece of adaptive equipment throughout his entire ALS journey. Because it helped him maintain his dignity. He didn't have to have anybody wipe him.
  9. K

    Women only - menstrual cycle question

    Thanks for sharing everyone. Even though we are just commiserating with each other - that really does help! Funny, I do joke about that with my women friends. "Forget about the ALS. It's the peri-menopause stuff that's driving me insane". I guess the good thing about all of that is... It...
  10. K

    Women only - menstrual cycle question

    Ladies - I know there was another "women only" thread..but, I couldn't find it. I'd like to know what you all do about your menstrual cycle. Unfortunately, I am going through menopause now (just beginning) - so, am experiencing hot flashes, night sweats, sleepless nights. THAT is my primary...
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