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  1. L

    Monomelic amyotrophy

    Thank you so much Suzannah for sharing your experience. I am, as I'm sure you know, really scared about my upcoming visit. I'm about 6 hours from there and after so many failed neuro visits I just really want to make the right choice about this visit. I appreciate all the advice and information...
  2. L

    Monomelic amyotrophy

    I am scheduled to see dr Appel in August. My concern is he specializes heavily on ALS and will put me through unnecessary tests. I just want to pick the right place. It is such a huge deal to be seen anywhere I just want to spend the money and time productively. Can you tell me about your time...
  3. L

    Monomelic amyotrophy

    For whatever it's worth all the neurologists I've seen don't think it's ALS. They say I would be a lot more progressed by now or worse, dead. Does anyone know more about MA?
  4. L

    Monomelic amyotrophy

    I have been undiagnosed for 8 yrs. I started having weakness in my left thumb and eventually got atrophy of median nerve. No other symptoms for all these years. About 8 mths ago I started having muscle weakness in the upper part of my arm. They have tested me for auto immune and all other...
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