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  • Users: Momofone
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  1. M

    Genetic Testing

    Hi there, My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into...
  2. M

    Thank you

    I've only ever written here in a state of panic. This time it's different. This forum, and the pinned post 'Do I have ALS?', have made me realize the anxiety that I have over inheriting FALS. I found the post last time i was wrapped up in fear, and it made me realize that anxiety was the...
  3. M

    I'm petrified

    Hi everyone, I'm so scared that I have FALS. As far as family history with the disease goes, I've lost 5 family members, including my mom (49y/o), my Gramma (69 y/o), and uncle (56 y/o). We have chromosome 9. I've been having symptoms about a week now; I'm a 33 y/o female. In the past, I have...
  4. M

    I'm very scared...

    ...my family has familial ALS. Four people that we know of, including my mother and grandmother, have succomed to ALS, and we're working on a 5th. The last 3 days I've had weird sensations in my right foot. I noticed it for the first time three days ago when I woke in the morning. It's an odd...
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