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My wife Jasia passed away on March 3rd, just before this pandemic was a reality for all of us. I was out of the country when this happened and I was unable to be at her funeral (for travel restrictions mostly). Today, five years ago we got married. It was also around that time that she got...

For a few days now, my wife wakes up every morning with a swollen upper lip. She has a trach for more than a year now, so there's nothing touching her lip during the night. I wonder if anyone else has a clue about this, there seem to be no other symptoms (i.e., not swelling in other places, no...

My wife was diagnosed two years ago, and the progression has been quite fast. Right now she is almost completely immobile, has a PEG and a vent since a little more than a year. She used to be really smart, both in the academic and the emotional sense, had a great sense of humor, and used to be...

Hello, I came across this episode of a podcast that I sometimes listen to, in this episode they interview a young ALS patient: https://gimletmedia.com/episode/88-second-language/ The story starts around 16 minutes in. I would love to hear your impressions about it.

Hello, My fiancee got diagnosed in April, it all started with muscle twitches on the arms and in January of this year she started to notice weakness on her right arm. Since the diagnosis her breathing and swallowing have become more difficult. I am an engineer, and I'm having problems at...