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    Bad days

    Today was also a Bad Day for my Brother (51 Years Old and 10 Months into this Disease). I was there comforting him and he began to cry, this emotion is not him. Very Seldom do I remember him shedding a tear. Its not that he didn't care or carry compassion he just channeled in different ways. Now...
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    New kid

    Welcome Man. The Humor and Courage here restores my faith in Humanity. My Brother has this thing we call ALS. It has been one heck of a ride. As someone mention to me just a few days ago, take it one step at a time...
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    My Worst Nightmare, By beloved Brother has ALS

    Today was a Good Day. We never discussed his health, and we laughed. One step at a time... Thanks Charlene
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    My Worst Nightmare, By beloved Brother has ALS

    You Folks are very kind and understanding. I'm so fortunate to have found you all. I will take all of your advice to heart. I was saying to a friend there is no text book in dealing this, I was wrong. Each one of you add a chapter in this Book we call ALS.
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    My Worst Nightmare, By beloved Brother has ALS

    I guess you can say i'm starting out in Phase One. Support Groups who can advise on how you deal with this. We were bounced from Doctor to Doctor, until a Nurse had the courage to mention ALS. That Day (about 3 months ago) my Life changed. He progression has been fast, weight loss, losing almost...
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    My Worst Nightmare, By beloved Brother has ALS

    Thank You. I have no idea where I go from here. Endless calls to Patient Advocate Groups have fallen on deaf ears. Facing the inevitable is what is causing the Pain in my heart. I'm done praying, my faith in God has been diminished. I ask why my Sweet Brother and not me? As morbid as it sounds I...
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    My Worst Nightmare, By beloved Brother has ALS

    Thank You to all that have gave me this outlet to express my sadness, frustration and everything else that comes with having a Relative with ALS. My tears have been endless and constant. Today was tough seeing my Brother.
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