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Thank you. I appreciate it.

We have asked at his appointments at Mass General but he is the youngest. I have been in touch with both the ALS and MDA chapters. They have been very helpful. I haven't put it out on FB though. It is very hard to have him agree to much.

His breathing is ok. He had a sleep study done and we have to set up an appointment to have them bring the CPAP. He is not very happy about this. He says his breathing is fine. And his speaking is getting worse....hard to understand him at times.

I feel for all of you and the struggles we all face caring for our loved ones. Can I ask if anyone out thereally is caring for a child with ALS? My son is 24 and was diagnosed in October 2014 at the age of 22.

Hi All, I was wondering if any young people with ALS would be willing to talk to my son. As I have said previously, he is only 23 and had his confirmed diagnosis in January of this year. A few weeks ago he fell and broke his foot in 4 places. He is in a boot but its nonweightbearing we found...

Thank you all. We did get a second opinion. He is being seen by Dr. Cudkowicz who is the director of the ALS department at Massachusetts General Hospital. He is receiving disability benefits and has Medicare. He also registered with the ALS Foundation. He is still able to get around on his...

Please help me. My son had his confirmed diagnosis in January of this year. He is only 23 years old. Not sure how to get through this. It seems to be progressing quickly. Help?!