Re: PALS roll call Wednesdays ( or whenever)
still here, going quickly. diagnosed May of this year. Just got accepted to Hospice, and met with the prescribing doctor who can get me the Death With Dignity drugs by next week. Not ready to go yet, but I figure my legs will go in the next 3 weeks...
So, I am all of technically 4 months into this, but I think it's more like 2 years.....but when I wake up in the morning lately it just seems that every morning I am worse.
Seriously, how fast is this stupid disease supposed to go? Every day I find I am less able to do things. I am still...
Ok, so I admit I'm a 53 year old woman, but menopause has come and gone......or so I thought. Does ALS screw with your thermostat? I ask because I am getting hot flash like symptoms and it's super annoying.
I've had a lot of stress lately about work (all done now)....my other ALS symptoms seem...
long story short, thought this was a work injury with foot drop after a fall back in Feb of last year. Leg continued to be weak but manageable. FF to a few months ago, feeling weaker and having twitches. Diagnosed with 2nd opinion just recently.
I feel like this is going very fast--I just told...
2nd opinion
als
back
cbd
cry
death
diagnosed
early
eye
foot
foot drop
ice
kids
mobility
muscles
oil
riluzole
sleep
story
trip
twitches
vacation
vision
walker
work