I decided to write this message as I understand that my first post in the DIHALS section has caused some concern among some of our undiagnosed members. The purpose of this post is to clarify a few things and to explain why you should not compare your situations with mine.
To begin with, at no...
Hi everyone:
Just wanted to say hi and briefly introduce myself. I was diagnosed with ALS in January, 2016 after about a year and a half of symptoms. I knew something was seriously wrong for quite some time, but my 4th EMG sealed the deal (I posted a lengthy and rambling message in the DIHALS...
Mod note: this member's journey has caused much concern among those worried about ALS. It is extremely important to note that his initial clinical exam was very abnormal ( far more so than brisk reflexes alone which can be normal). It was clear from the start that he had upper motor neuron...