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  1. Lynda

    PALS sleeping/napping in excess

    Hey guys, I'm very concerned about my husband's sleeping habits. He can literally sleep for 12 hours, then be up for an hour, then take a 4 hour nap. Is this typical with ALS? Today, he stayed home and I'm at work and I can't rouse him with the phone (the phone ringer is off in the bedroom)...
  2. Lynda

    paying for equipment

    I went under the Equipment and Supplies stickie, and the "document" listed there does not load, so I was unable to gather information. So far, we have not yet had to purchase any ALS-related equipment. The first item on our list was a walk-in shower with seat, as showers seem to be where...
  3. Lynda

    Cooler on wheels for work

    Hey everyone, This might not be your typical "ALS gadget" but I'm hopeful you guys might have good ideas. Right now, I pack up my husbands snacks/lunch and 2 protein shakes in thermoses and he brings it to work with him to have throughout his work day. The foods are in a typical handheld...
  4. Lynda

    feeding tube/bag decision

    This is not a decision my husband has to make right now. He can still eat and drink, although some days are more laborious than others for him. I prepare softer foods and high calorie smoothies for him to make it easier and that's working for now. He's actually up 12 pounds in the last 2 months...
  5. Lynda

    First Local Support Group Tonight!

    I don't know if all support groups handle things this way, but our local ALS chapter holds group meetings in various towns throughout the state. Looks like they average one meeting a week. It appears that some are just for patients, some are just for caregivers and some, like the one we will...
  6. Lynda

    New to the forum and ALS

    Hi everyone, my name is Lynda. My husband has been recently diagnosed with ALS, although we believe his symptoms actually started slow and steady a few years ago. I am watching him go through the various stages of this disease emotionally and physically and it tears me apart. I tried my best...
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