Search results for query: *

Tillie I don't want to be here, trust me. i appreciate the candor but I know even with my Mom, the atrophy you describe didn't happen overnight. I could send pictures that show more but then someone would say it's the way I took the picture. Bottom line for me is things changed over time and...

Wendy Thanks for your follow up message. Your statement about your experience is what baffles me. I am not a doctor but to this point, nothing has failed. Even with what I perceive as weakness and atrophy, I can still pass the simple tests that others fail. I just don't get the progressive...

Hi Wendy Thanks to the response. In all my visits to my PCP, I don't think he really took stock of muscle size. His exam was more strength based. I'm pretty certain if today he were to feel my left thigh vs right thigh, he would notice a difference. I tried to follow the stickies and have...

Tillie I spent as much time with my Mom as I could. If you are implying I didn't worry about her or care for her because I was worried about myself, you are completely out of line. Like I said to Nikki, there is measurable difference over time (I've read the stickies). I stayed away for a...

Hi Nikki Thank you for your response. Thank you for the kind words about my Mom. I miss her every day. It took a lot to repost in here because I know those replying have limitations. I truly appreciate the time and insight. My PCP never provided much. As time went on and I took advice...

Good Morning I had two previous threads on the forum which have closed, 1 regarding my Mom and dealing with her ALS diagnosis and 1 regarding the symptoms I was experiencing after meeting Dr. Google and living with a loved one with ALS. A lot has happened since my last post and I wish I wasn't...

Thanks, Mike. Your time, insight and way with words are invaluable. Your comment about children, it hit home. I hope we never talk again and please know the world needs more folks like yourself. Mark

Hi Mike I am doing my best to stay off this site, as I respect the hell out of the contributors here and the LAST thing I want to do is waste anyone's time. I saw the guy last night who just kept at it and at it. But I have come back because I posed a question and respect your feedback and...