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I called for a refill of Riluzole about a week ago to Publix Pharmacy. They said they had ordered it and would be there the next day. A week later they say that it is unavailable from the manufacturer. We were able to find some at a CVS so I'm fine for the next month. Has anyone heard of this...

Hi, We are scheduled for a clinic at Jacksonville Shands with Dr. Pulley on August 18, which is covered by our insurance. We also got scheduled for a Dec. 17 clinic at Jacksonville Mayo after we saw Dr. Boylan last week. Our insurance doesn't cover Mayo but we are on one of the dates at Mayo...

Hello, Yesterday I saw Dr Boylen at Mayo Jacksonville and he made the call that the doctor in May was not ready to make. I think I am relatively early in the progression, but I have declined since May and now have regular spasms in my hand and not much use of my forefinger. Arm is very tired...

This is from the report by the neuromuscular doctor at Shands/Jacksonville Florida. I would appreciate your input and help with the questions I pose below. "Needle EMG demonstrated active denervation, chronic reinnervation, and reduced voluntary motor unit recruitment in the right FDI, EDI...

My local neuro guy has ordered a barium swallow test to get a baseline. I'm not sure what the point of this would be. I don't have a swallowing issue now and when I do it will be obvious. the test seems unpleasant and I wonder if people have this repeated later when swallowing issues do occur...

Hello, I have been on my journey to try to figure out what is wrong with my rt fingers, hand and arm, beginning in Oct. 2014. It started with a general feeling of weakness in my grip, but nothing too alarming. Then I found myself unable to pinch a clothespin at all with my thumb and forefinger...