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Thank you for your reply. I think the best place for her to enjoy her life is at home. We do have nurses 40 hours a week, but we might need to increase as the disease progresses. I worry about my dad. I encourage him to leave and take some time for himself, but he just can't seem to do it...

Thank you for your quick reply. I think the big question is at some point will my mother need to be moved to a skilled nursing facility? Her symptoms are happening so quickly. And the painful part is that she is aware of everything. She will not let anyone see her besides my children and...

This is my first post. My mother is 65 and was diagnosed with ALS and FTD two weeks ago. We knew something was happening with her because little pieces of her were slipping away. The symptoms began in Nov. 2013. It started with upset emotions, moved to losing the ability to speak, then swallow...