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also the complete immobility is very strange and doesn't match PSP CBD Parkinsons or parkinsonisms

we have been told that it is not PSP because of positive EMG showing muscle weakness

I really not trying to worry I am mostly trying to find answers :) my dad has no use of his arms and legs cognitively so he doesn't walk or stand or really do anything we have to do everything for him but when he gets the muscle spasms his arms and legs will lift straight up. We had come to...

Hi Max, I have read several of your posts and blogs I don't want to do anything wrong on this forum I already feel alone so this is all I have my dad was diagnosed with ALS july 2014 he is totally paralyzed now and in a power chair but he can breath and swallow fine ....yesterday we went to my...

hello Kelli what you are going through sounds so similar to what my dads going through I am trying to reach out to anyone that thinks they have been misdiagnosed with ALS

My dad is also been taking baclofen 3 times a day and the spasms are getting worse not better my dad is in o much pain from the spasms and we haven't gotten anywhere

no they never mentioned MG I came across the disease with my own research but they were so confused yesterday at the appointment that I now feel uncertain MG is an autoimmune disease and my dad has suffered with RA which is an autoimmune disease

I just feel so confused has anyone ever heard of MG (Myasthenia gravis)

I don't know how this works my family is falling apart my dad was being seen at the Mayo clinic in Scottsdale Arizona and is currently being seen at the Gregory Fulton ALS clinic at St. Josephs his ALS doctor is Ladha

I need any insight I can get my dads symptoms started in may 2012 with weakness in his right hand now he is a complete paraplegic but his breathing is totally normal and he swallows with no issues. Back in 2012 my dad had a cancerous tumor removed from his vocal cord, the cancer scare made my...