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Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit. This forum and all of you were so important to him. He talked about this community of friends every day. He was...

Finally got the BS cleared away and now officially in hospice care, morphine, Ativan and all what comes next Got good nurses coming in, got good aides night and day to give Beth much much needed rest. Can’t type my own texts so alot less frequent correspondence , sorry! Things have sped up...

Does anyone have this issue? The perfect storm of atropine (mucus) Benadryl (sleep) our heating system, learning how to stay hydrated with feeding tube plus slight air leak of my trilogy mask going right to my eyes. Another sh*t storm side adventure to the nightmare. I use lots of eye drops...

Found out yesterday from pcp that hospice denied me. Reason given, they saw me at a movie and I was laughing! Hey I couldn’t help it, it was Will Ferrell’s and John C.Riley in Holmes and Watson! Not kidding about this Chally

Ski patrol took me down black diamond in the rescue sled,wow what a time!

Back home after three days in VA hospital Turns out I have a bleeding ulcer , not sure what brought it on had it back last December also. Dr said to acidic in stomach and probably stress Hospital stay was fair to good. Many medical staff do not have experience with als patients so a lot...

Any body using products called ISOSOURCE

Although certainly not a cure my weekly session gives me some serinity and a chance to clear my mind. This journey to the bury hole interesting as it is tends to wear a person out a little R&R of the mind helps recharge all systems. Lov yaall Chally

Great day with friends and grandson This is the new river in WV Being on the water stregenthens my soul

This was a lot of fun to make with my PT! Hope you enjoy! Chally