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Also im of North African descent(Sudanese american parents) which was where this was said to be more prevalent in. It may or may not be. I just hope whatever it is doesn't disable me by 30. Because I need time to straighten out my own life first.

Yeah from my limited understanding of jals one could not be bedridden until the age of 50. Which would mean for years one would not have failing symptoms considering to have juvenile als you have to have it under 25. It varies from person to person. At 11 I had a physical problem concerning my...

I found this link that was really helpful. Orphanet: Juvenile amyotrophic lateral sclerosis On more description on the illness itself.

Ok I just found something. The quick description really interests me. What is Juvenile ALS - Medical Term

Does anyone have any information about jals? Other than other forms of als? All I can really find out about it is familial als and notable people with jals jason Becker and stephen hawkings. But nothing actually about this disorder specifically. Like I do with other forms of als. Does anyone...

I was specifically talking about jals not als in general. But yeah the typical symptoms I've read always say you'd be inambulatory after a year of diagnosis but I've read that jals is slower progressing. The thing that really got me was some of the things described in notable people with jals...

Like the symptoms and progression? I've had problems since I was 11. But I just kept ignoring them. But lately it's kind of gotten bad. Likely my calves are very hard and tight and I'm sedentary but young and my mom's family is very toned/muscular but it hasn't really a problem until a few night...