No clue what the ALSFRS-R is - I try to believe that i don't have this. But my weakness seems to not leave. Do your doctors tell you no way like mine do? Let me know?
Thank you Nikki, as always. I have not seen the trusted neuro to talk about anything that you told me last time. I have been putting it off but I feel that I must go before I get married. I will do everything that you told me. The fact that I haven't been to an "official ALS Clinic" is something...
For all of the people who have told me to get off this site or Why am I here? I apologize to you and ask you to disregard this post unless you have kind insight. This is for Nikki, Laurie, and Mike...and a few others who have helped me along the way. I have scheduled an appointment for May 18th...
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May I ask about foot drop? My right foot is so heavy - it's just getting to be so bad? I am just so weak in my legs and I cannot run. I just read the story of the NFL player Dwight Clark who was just diagnosed. It started with his hand but he told his neuros that he can't run. Pete Frates told...
Long weekend. Thank you for another reply Nikki. I have not told my neuro the things you told me to because I haven't seen him. I went to the psych for about two months and he was in contact with my neuro who assured him that I could not have this. With all the issues I have, I keep avoiding...
Hi Nikki and thanks for chiming in as always. I went to the psychologist for a few months who kept in touch with most trusted neuro who assured him many times there is no way I could have ALS even though I haven't seen my neuro in months. My fiancé doesn't want me to go see him but I think I...
Hi everyone - I am reluctantly posting again after doing my best to stay away from this website. I stayed away for the most part since my last thread but have glanced every now and then. I am back to say that I know not all is well. I am twitching everywhere and my symptoms regarding bulbar...
Nikki,
I am taking this all into account and plan on doing everything you told me to do. I have mad an appt with my neuro and am looking into functional medicine doctors in the NYC area. I hope this somewhat helps me and am happy that I have a new direction to go in.
It's been a whirlwind of...
Hi Mike,
And thanks for responding. My most recent visit was with my most trusted neurologist. He told me he is officially stumped after he got the results of my second cervical spine MRI. He saw nothing changing in the c6/c7 region even though it still indeed had some issues. He is convinced...