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Thank you all for your posts, I am also hoping it is something more benign as well since it is localized to just the left arm and it is not my dominant arm. I've also heard things like Isaac's syndrome can be acquired in associated with peripheral neuropathy which I know for sure I have the...

Thanks for the advice both of you, esp on the insurance part....I will get on top of that. Atsugi......I have hyperreflexia, loss of grip strength in left hand, twitching, and some atrophy in the hand(which I thought was from the ulnar nerve)

I do have all of that so I will remember to bring thanks.....quick question: have any tips on how to get better sleep when twitching is out of control?

It is the MGH clinic Nikki.....I am schedule to go there before the surgery as it is so I guess I can always cancel if need be. And correct me if i'm wrong though, ALS wouldn't affect the sensory neurons that I have with pain at elbow and tingling in pinkie and half ring finger?

Not sure if this is the thread I should post to but I received this news on tues from a neurologist and as hard as i'm trying the anguish is starting to be overwhelming. First, i'm a medical records coder so I know some base ideas of als already but I am in no way a physician. I hurt myself 6...