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All i can do on here is talk about and share my families experience, I am not an expert, and will never claim to be, i in know way intended to hurt anyone's feelings or make anyone feel guilty. I will now unsubscribe from this sight and deal with my husbands ALS without this site. To be told my...

Hi, I am so sorry that you have been diagnosed with ALS. My Husband was in January of this year. I can just say, you have to try and stay positive, your mind has to be reeling with every emotion. how to tell people, how to tell the kids, family, colleagues. But somehow we did it, and now that...

Wow, I am completely overwhelmed with all the responses. Everyone's advice is so heartfelt and real, that's it, it's really real! Friends and colleagues just don't seem to get it. You all do. Thanks I did register with our local ALS Chapter in January, and they have been amazing. Steve and I...

I am in the same position as you, but my husband was diagnosed a few months ago, my husband Steve is everything to me and i too have this perfect family. How crap this is, I am sorry for all of you. but i am glad i joined here today, it has given me some sort of clarity.

Hi , Thanks for your response. Steve did not serve in the military, but the local CT chapter have been very helpful with good resources. We actually moved over here from the UK in 2007. We are hoping for a slow progression, he started with symptoms in February 2014, and those symptoms seem to be...

What wonderful words, thankyou x

Hi, It's taken me a few months to get my head around this and register. My husband Steve was diagnosed January 2nd of this year. We had been told it was chronic Lymes, but then when things didn't improve the doubt started to set in for Steve, and we went to see a Neurologist, who tested Steve...

Hi Everyone. My husband of 21 years was diagnosed on January 2nd 2015, we have been through every emotion possible since then. We live in Connecticut, but we are both from England, and moved over here to the US in 2007 with our 2 sons Ben and Sam. Both are now in College. This has to be the...